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Fatigue, Raynaud and ammonia
12 February 2016
Posted in About me

Earlier this month I promised an update on the topic of fatigue, but now it seems that it'll become a bit more larger topic. I guess from looking at the topic, you'd wonder how these 3 are connected, but I think they are. Though not overly shure (and I hope I'm wrong), I will go to the rheumatologist coming Thursday. So lets get started...

First of all fatigue... It's been an ongoing topic for the last couple of years already, but now things are getting worse than before. The last two to three months the fatigue comes to a point that all of a sudden it creeps up on me and within 15 minutes I am close to falling asleep. Though not litteraly falling asleep, I do need to get some rest or loose concentration with what I'm doing fast. This mostly results in lying down on our o-so comfy couch, but at times I have to climb up the stairs and need to go to bed to rest for a longer period of time (hours that is).

Then Raynaud's phenomenon... It's not a decease, but a condition of severe chilblains, which I've had for already a long period of time (decades). Lately though it's getting worse and last month I've went to the doctor for it and he confirmed that I indeed have Raynaud's phenomenon. As said, normally it occurs as a severe condition of chilblains, but it wasn't that cold this winter (we've had no frost during the day) and in-house I have it as well. The doctor adviced me to wear gloves to keep my fingers (mainly my right hand's pinky finger), butr that's to no avail.
Reading in on Raynaud's phenomenon, I happen to have secondary variant of it, because it's not on both hands (both hands would indicate a vascular problem). And that secondary variant is what a somewhat bothers me, because it's a symptom of something else in my body going wrong...

Then the ammonia... Now that's an odd one when it comes to the human body, right..?
Not having a real sense of smell, I noticed that my body odor has changed the last couple of months. It was only recently that my wife told me that I had that slight hint of ammonia around me. I googled that (Google is not my friend, and I used Yahoo instead ) and found out that it's caused because my body is burning proteins (muscle tissue most likely) and that my liver or kidnies are not functioning properly. Not peeing blood (though my urine has become somewhat darker over the last couple of months), my guess is that it's the liver not working at 100% (damn, no more booze to drink ). But then the question remains, why muscle tissue is burned instead of fat... I still am around 105kg and have enough fat to be burned...

How do these 3 things connect..? I have my ideas, and because of that I've called the rheumatologist for an appointment (which I have coming Thursday). With the previous findings of the rheumatologist (which I forgot to post here I just found out), I happen to have artosis in both knees with the right one aching severely from time to time AND she has found a dubious ANA value. At the time it was nothing to worry about, because the rest of the bloodworks didn't point towards muscle fibre inflamations (which she tested for the Raynaud's phenomenon and pain in my right pinky finger). Now with the symptoms stacking up, she wants to take an other round of blood and physical examinations to see what's changed.
After having read the Wikipedia a bit (and you see a couple of links here already), I'm starting to think of Sjögren's syndrome, whish also was consistent with the rheumatologist's latest blood examinations. With the current problems that I'm having it might indeed start to develop some more, though I hope not...


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